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Addie was a young girl, carefree, with a zest for life. She loved her family and friends. She enjoyed school and was always keen to try new things. Addie had a passion for sport, playing football and netball and training regularly with a local athletics club. In 2011, when Addie was 9, her life and ours changed forever when she was diagnosed with a rare form of bone cancer, spindle cell sarcoma. Surgery removed Addie’s tibia bone, which was replaced with titanium metal and she spent several months in hospital having chemotherapy. Addie recovered and she returned to a relatively normal life.
For the next few years, there was some obstacles to overcome, with regular visits to hospital and further surgery when the prosthesis in Addie’s leg broke, but life was happy… read more
Whether it’s taking part in an event or organizing your own; either way, it will help us to support much needed research into high grade pediatric brain tumors, with the hope of one day finding a cure and better treatments and support further study, awareness and support for families with Li-Fraumeni Syndrome.
If you need support with your fundraising event, we will be happy to help you or if you would just like to inform us of your event then please contact us. We will do everything we can to help you make your event enjoyable and successful.
English comedian, actress, writer Catherine Tate is keen to support the Foundation.